I have about 5 minutes until I need to start the bedtime routine. I just have to get this out...
Cole would only eat 3 bites tonight for dinner. He didn't eat much for lunch to day either. Tried to do his vest earlier and we only lasted about 10 minutes before he had a complete breakdown. Then when I tried to give him his meds tonight, he took off running and through a fit. Thankfully his dad was home so he took over (they always behave better for him!!!) I know this is just one day and that earlier today he was so easy and compliant with meds but everytime he fights me or we miss something I just freak inside. What if he starts acting like this EVERY time? What if, what if, what if!!!! Some days are just harder than others and some days I'm just weak.
So much has been going on lately! Eventually I will find the time to get it all on here.
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4 years ago
I feel your pain ...even when things are the best for Madeline- she is eating perfectly, doing the treatments, etc. CF never makes you feel like you can win. I have so many days like this. At least we are in this together. PS: your boys are adorable. I <3 Cole's red hair!
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