Let your soul shine

Most things in this world are not simple, black and white or easy. CF is no different. There is no typical CF case. I know people who make it until adulthood with no hospitalizations, no real health issues. I also know of several children who don’t make it to the double digits or children who make it but spend most of their time in hospitals or sick. There are no answers to “what to expect” or “what will my child’s life be like”. This was the hardest part for me after the diagnosis. I so desperately wanted someone to tell me the answers to all my questions. The more questions I asked it seemed the angrier I got. They were trying to answer me the best they could. The problem was that there were no answers for my questions. I wanted to know things that only God knows ~ things that are not for us to know while we’re here. The truth is that knowing these answers wouldn’t help anyway. It wasn’t going to stop the pain and fear that CF and life brings with it. I didn’t actually need the answers to the questions – I needed to change my attitude and perspective. I needed to find my faith. The most beautiful thing about life is that a lot of the time your entire world and situation can change by you just changing the way you look at it. This is one of the most amazing gifts we have been given – yet so often it is overlooked. I think that is because it is not as simple as it sounds and as much as we’d like to deny it we tend to hang on to our fears and faults and feed them instead of handing them over to something we cannot see or prove or control. But the sweetest part is that if you get to a point you can hand it over you become free. Free of all that burden and fear you carried. Free to actually live your life and enjoy it. Free to let your soul shine for the world to benefit from.